Thursday, December 4, 2008

Aligning with what the world offers to us


Victory - we are potty trained!

Here's a link to my bro-in law's own blog... which is geared for the midwest fly-fisherman, BUT his most recent post on 12/3 contains the most heart-warming story about Jack that also reminds me about the gift contained in each moment. I also understand now why jack answered with "FISH" when the teacher at preschool asked what he was grateful for last month.

Jack is doing really well. He's busy casting webs like spiderman and opening the chocolate in his advent calendar. He and Sam had a fist fight over who saw Santa out which window in the car this morning. So, all in all I have to say things are 'normal' around here. We have our next visit to the kidney doc at the end of the month.

Sadly, we had to say goodbye to our home care nurse this morning. Our insurance changed with Harry's new job and as a result this service is no longer provided. We had VERY tearful goodbye this morning and hope to have a new plan in place soon. We still need to have biweekly labs and an assessment for Jack. So, I trust in the grand plan but hope that we can rebuild a new relationship in a clinic where Jack feels safe. (I'm not jazzed about hauling both boys out in the snow and sitting in a clinic with a child that is immuno-suppressed all before 8am). His blood draws are complicated as his veins are so small. This morning it took 3 venal punctures, strong arms, lots of yogic breathing, and finally a finger poke to get the job done. Thank GOD for spiderman band-aids and for our amazing nurse Lynn.

And yet, .... we remain humbled and grateful for today, for fish, for uncle jeff's unwaivering support around here.

Some pics...



on a hunt for a xmas tree in st. croix valley with uncle chad and pop

superciliousness