Wednesday, May 7, 2008

a new day

I (Ali) am back! Jack is out of ICU and into a room with a beautiful view. We are both moving forward with our healing and even more grateful for the little things we take for granted: sun on our face, familiar faces, food, a deep breath. Meanwhile, Sam and Pop are holding down the fort at home. I don't think my step-dad has ever been so domesticated in his life - laundry, dishes, diapers, etc. As my step-dad (pop) says "god must have a sense of humor" because now he is the only one allowed to change Sam's dirty diapers. Totally fine by me!

So, Jack was able to sit on mom + dad's lap yesterday and even indulging in some hospital delicacies. I almost tipped over when they delivered a cheeseburger, tator tots, canned green beans, and chocolate chip cookies to him in ICU. A sweet and generous offer but a little overzealous. A feeding tube has been placed back in his nose (which we are familiar with) and the plan will be to ween him off this slowly and get him on solids. He is definitely showing interest and even had a pizza ordered to his bed to share with Uncle Tim & Jeff last night.

Jack's progress is excellent. They are wrestling with a few issues all of which are expected after transplant and manageable. In general, the main goal at this point is to get the anti-rejection drug he is receiving to the appropriate level before he can be discharged which is as early as FRIDAY! Unbelievable. Wow.

There are no words to capture how very grateful we are to all of you for following and supporting us through this. Your emails on the blog have given every member of the family a huge lift. Massive hugs and love to the Anusara community, locally and to the kula gathering in Denver this week. Your meals and prayers are so heartfelt. Grandpa Bob (aka: pop) - thank you for sitting by my bed in that ridiculously uncomfortable rocking chair all night long and for being dedicated to service (a true yogi). Thanks to Jeff who slept overnight with Jack last night so Harry could come home to his own bed and Sam. Thanks to Uncle Tim for getting Jack to eat food and laugh. To our mpls friends... you guys rock. We can't wait for the kegger! To my girls (you know who you are) - thank you for staying so close and for the beautiful gift. Laurel - thank you for driving my mom to pick up food at my favorite restaurant even though I don't remember eating it. Mom + Jim... I can't even go here with you yet. Just stick around for a few more days... please. And.. thanks to Jackie + Joe (harry's folks) who so clearly have raised the most unbelieveably patient, strong, loving, husband, father, and friend anyone could ever ask for. Thank you all.

Keep your prayers and thoughts flowing. We still have a long road ahead but the sun is shining on it.

We love you all,

Ali

11 comments:

The Granny Project said...

so good to hear you're all doing well and are making such AMAZING progress!
xoxoxoxo
kate larson

Jill Dunlap said...

My sweet girl- Marne is here with me reading this blog and we are in awe of you and this beautiful family you have. The pictures and your voice have us smiling and crying all at once. We love you and wish we were there hangin with our girl! Our prayers are with you- As Mason would say..."Peace Out!" Love- Jill and Marne!!!

Shoemates said...

Harry and Ali, it is great to hear you so clear-minded and positive. We would love to visit, and hopefully will as the week calms down. We have been thinking of you each day, and it was great to follow your progress on the blog. Christie gave us some updates and we figured all was going pretty well. Keep moving forward - kisses to all, love, the Shoes

Unknown said...

So glad to hear the recovery is continuing to go well and that Jack may be out of the hospital at the end of the week! Such an amazing journey...thanks for sharing it :)
Jenny M

Unknown said...

Harry & Ali, today's blog just brought tears to my eyes - how well you are both coming along and all the support you have. been in contact with Susan and know how hard it has all been. Grandma Helen has been so sweet and checking with me every day and sends her love. wish we could be at the kegger - you have wonderful friends and keep up the good healing. Flora and Jim

Bo said...

Shizzlin' Rockstars (you 4+)

Wow cool to read your words Al .... tingles ....

Harry you are the man, the only thing lacking from your sharing that I am profoundly missing? Gotta see some pics of Al on pain meds in knitting class!

I had occasion to be with my 10 year old Olivia for a CAT scan .... on 5/2! Man was there vibin' .... it's some kinda place sitting in a waiting room waiting for a Doc to deliver the news, ".... her brain is ok"

I was struck by the feeling I had then, that it was but a small taste of what you guys are doing .... your strength .... lifts us all indeed.

WHEN is this kegger!?

Lovelots Bo

Matt Dahlien said...

so HAPPY to hear things are going well. Can't wait to see Jack, and knew he was going to exceed expectations...it's genetic. See you guys soon!!!

love Matt, Allison, and Maddie

Aunt Sue said...

You guys are amazing!! Ali, you sound like a wonderful soul/spirit, just like your mom. I'm keeping you all in my thoughts and prayers.

Sue from Susan's Monday Yoga

kellie said...

Just thinking of you guys! I hope Jack comes home tomorrow! ( :
kel

Margie said...

It's so great to be able to read all this good news each day!You've all been so strong and patient and I know there will be longlasting payoffs! I am thinking and cheering for you all!!

Love, Margie

Robyn said...

So exciting to hear about all the positive progress!! Continuing to send you love every day ... Robyn